Fibromyalgia: How to make the invisible visible

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It is a disease characterized by chronic widespread pain that goes unnoticed to the naked eye. It affects more women and its causes are not known. There are groups in networks that help patients.

FIBROMYALGIA.  It generates chronic, widespread musculoskeletal pain.

FIBROMYALGIA. It generates chronic, widespread musculoskeletal pain.

You can not see but feel. There is no perceptible signs on the skin or other bodily pain evidence that tell patients. However, sometimes it is so intense it can become disabling.

Fibromyalgia is a disease that produces chronic, widespread musculoskeletal pain. It is part of the so – called rheumatological conditions and is known as the “invisible disease , ” precisely because the only manifestation is describing pain patients.

The main symptom is pain that causes pressure in defined areas of the body. And while the disease is widespread, there are 18 specific painful points (9 on each side of the body) located in the neck, shoulders, upper chest, elbows, lower back, groin and knees, among others. Digitally compressing those points, the doctor performs a physical examination diagnosis.

The disease mainly affects women between 30 and 50 years. In addition to the intense pain that occurs, other symptoms associated with fibromyalgia or chronic fatigue and exhaustion, increased sensitivity throughout the body, trouble falling asleep or frequent interruptions of rest at night. Also, patients may have difficulty concentrating or suffer in partnership anxiety disorders or depression.

Autoconvocados to help

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“I started with a sore shoulder, I went to the doctor and told me it was a bad move, to take a painkiller. Several days later, it hurt me all the arm, hand, fingers up. At the time, I could no longer work. The pain is constant. Yes, there are days that I feel better, and then make you want to go out and do things , “says Liliana Morales, who has fibromyalgia three years ago.

As happens to many patients, Liliana found it difficult to have an accurate diagnosis quickly. ” There is a lot of ignorance. People see several doctors to know what they have. Me too told me I had something else. So I thought, ‘there can be people who will pass it . ‘ ”

Liliana coordinates a group on Facebook, “Let us strive to heal Fibromyalgia and” one of several pages that link patients with this disease. “I felt I had to help people who are diagnosed and have doubts, fears. They are big changes that brings this disease , ” he says.

Thus he began meeting with people in your group and then made contact with patients from other pages and began to organize joint actions. Today work in coordination with two other groups: Argentina Autoconvocatoria people with fibromyalgia, Cordoba, and Fibromyalgia Missions.

In Facebook share information about the disease, post free courses and workshops organized by hospitals and institutions, answer questions, promote participation and invite count the feelings and experiences as patients. ” When we consult, we try to guide them , to contain them , we suggest activities. Even contacted a psychologist , “Liliana says.

Among the groups they help getting drugs and sending them to the provinces for those who have no resources, are very active on twitter and working toward the enactment of the law on the prevention and comprehensive care for people with fibromyalgia to 7 last June obtained the opinion of the Health Committee in the Chamber of Deputies.

While the origin of the disease is unknown and evolution is chronic, with early detection and interdisciplinary treatment which includes, in addition to medication, psychotherapy, eating plan, physical activity and relaxation-techniques to improve results are obtained the quality of life of patients.

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